Our Son, Therapy, Transportation, Travel

A Rigorous Schedule

After finally finding a place not too far from us that has hippotherapy, I learned that Sebastian isn’t quite old enough for it. I found an excellent place that is probably an hours drive from my mom’s: The Right Step. They recommend you don’t travel much more than an hour for the therapy. The woman who runs the therapy said Sebastian needed to be close to 24 months old. So the next time we come to Michigan we will have to try it out. I can’t wait.

As excited as I was about hippotherapy, I also can’t imagine adding another therapy into the mix right now. As it is we spend three hours every morning doing HBOT, this includes the 1 hour 2o minutes in the chamber and the rest of the time diving. We do this every morning from 9am to 12pm. On the days we have ABM, we go home for lunch and try to squeeze a nap in for Sebastian and if he needs to or can, he sleeps some more in the car on the way to the session. So far we’ve just had one a week the past two weeks, but this week we have two. Each session is an hour and the driving is about 40 minutes each way. So that’s another three hours for our afternoon. So on the days we have two therapies, that’s our day.

We’ve also added doctors appointments into the mix. Getting things checked while we are here and have access to a variety of specialists like a neurologist, pediatric ophthalmologist, pediatric GI and pediatric ENT. The doctors that take our insurance and don’t have a copay at the appointment are all in Southfield or Detroit, which is a 50 to 60 minute drive. So aside from all the sessions and appointments, there is a lot of driving involved.

The driving has proven more challenging than we anticipated. Although I can drive, my mom has been taking us everywhere. She is awesome. She is also getting as tired as we are because she still has to work in between, before and after appointments. The fuel efficient car we were planning to use and that I would drive on my own broke down just before Sebastian and I arrived in Michigan. So now we have the very fuel inefficient truck that also has to take my mom and Jerry to work. It’s been challenging, and expensive (gas).

These are the things that make us tired at the end of the day. And sometimes during the day. These are the things that makes it difficult to get much done in the evening after Sebastian has gone to bed. Because I just want to go to bed too. But I also need some time to unwind so I don’t go to bed right away even on the days I probably should.

BUT. It’s all worth it. When Sebastian reaches for things and grasps things with open hands that are not too tight. When Sebastian laughs when playing a game with his hands with his grandma. When Sebastian scoots on his back. When Sebastian is relaxed and enjoying life around him after his therapy sessions. It’s worth it. Every moment, even when we miss his daddy soooo much. We know the things we are doing are so good for him and helping. Bit by bit. One moment at a time.


3 thoughts on “A Rigorous Schedule”

  1. Kara, have been following your US adventures! Seems like yesterday we followed a similar schedule when Cooper was smaller. It is all worth it, and yes it is exhausting but at the end of the day it is for your boy, remember to take care of yourself and add in some “non” therapy, therapy like eating ice-cream or playing on a swing at a park, There will come a day when it does not consume your life but while it does, know it is definitely for the best outcome, Sebs independence and best chance at a fantastic quality of life πŸ™‚
    Thinking of you often, Bron xo


  2. You guys are doing so much while here! What a worthwhile trip, though I know it’s hard to be away from Ali. It was great to see the video of therapy. I can’t wait for you to come vacation here. We’ll have “Kara therapy” and allow your muscles to relax along with your sons. πŸ™‚


  3. Wow, I am exhausted just reading about your schedule! BUT I am really thrilled that you are making the most of your time and already seeing the benefits of all your efforts. It’s great that you’ll be able to take back so many ideas (especially from the ABM activities) that you can do yourself when you get home.

    It’s a shame the hippotherapy isn’t on the agenda yet, but great you’ve found somewhere for next time. BC started horseriding when he was 3 and I can definitely say it’s his FAVOURITE activity of all the things we do.

    Travel safe and enjoy the rest of your time in the US!

    Looking forward to hearing more,


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