The exerpt below was taken from an email I received today from Reaching for the Stars, an organization in the US raising funds for CP research, providing support for families and raising CP awareness.
‘We are very pleased to announce that today, March 25, 2011 has officially been designated “National Cerebral Palsy Awareness Day” by the U.S. Senate (Resolution No. 75). Senator Johnny Isakson (R-GA) sponsored the effort, along with Senator Robert Casey (D-PA), via the efforts of RFTS over the past year. National Cerebral Palsy Awareness Day has now been put on the National Health Observance Calendar permanently and we are thrilled to see so many organizations and groups around the country marking the day in a variety of ways that draw much needed attention to Cerebral Palsy.
The establishment of National Cerebral Palsy Awareness Day helps shine an important light on CP and those children and families impacted by it. Cerebral Palsy is the most common motor disability in childhood. It is not a disease. It is not contagious. The latest statistics show that the Cerebral Palsy prevalence rate is approximately 3.3 per 1,000 births – more common in any year than many types of cancer, stroke, spina bifida or muscular dystrophy, and affects over 800,000 Americans. In the majority of cases, the cause of CP and how to prevent it is still unknown, despite advances in genetics, obstetrics and neonatology.
There is currently NO federally funded national CP surveillance or causation research despite the number of children, adolescents and adults affected.
It is estimated that the lifetime care and medical costs for all people with CP who were born in 2000 alone will total more than $13.5 billion. Dedicated research is needed to investigate the cause and best interventions for CP to help reduce this substantial (financial) burden.’
For more information please stop by Reaching for the Stars.
One of their current spokespersons/advocates is Michael Kutcher, Ashton Kutcher’s twin brother with CP.
Remember to post any questions in the comments as I will be answering them on March 31.