Thank you for your patience. Thank you for your compassionate smile as my son loads onto the bus on a lift that takes his wheelchair up. He smiles down at me as we wait for the driver to get on and then roll him in. You see us smiling and it’s contagious. Thank you for… Continue reading Patience Required
On my first Mother's Day I was carrying a photo with me of Sebastian in an incubator, connected to machines, as I was waiting for the second bus that would take us to the hospital to see him. We ran into one of Ali's previous work colleagues and despite a photo in which my baby… Continue reading Mother’s Day Memories
...with the new Splashy, by Firefly. We were super excited to receive the new bath seat, the Splashy for Sebastian to try out. Sebastian chose green (one of his favourite colours) and that's all we knew about the product until it arrived in the post. Easy to assemble, just a few pieces to click into… Continue reading Making a Splash…
The point is that this is life. This is love, and sex, and parenthood. These are relationships and this is communication, stilted and awkward as those two both can be. This is taking time to listen, and going slowly. These are four people circumnavigating disability. Two lovers, both with cerebral palsy, and the pregnant mother… Continue reading This is the Point
Still writing. Just keeping it to myself. Putting it into something bigger. Recently I wrote an article for Bloom, an online magazine for parenting kids with disabilities. I remember when we arrived in Toronto and I first read Bloom. It was a hard copy magazine then. It feels pretty great to be a part of… Continue reading Yep. Still Here. Still Writing.
'The Journey in the Destination' — Dan Eldon I have had that quote as my email signature for years. My first email password was journies, spelled incorrectly (don't worry, I don't use that anymore!). I first read Dan Eldon’s journal while still in college, just 3 or 4 years after he had died. It inspired… Continue reading Journeys
'I love you, Sebastian. Do you love me?' Tallula leans over me to see her big brother, anchored down into the accessible spot on the GO bus back to the train station. Sebastian smiles. Tallula sees him and repeats his 'yes' out loud in case I missed it. I scroll through photos tonight to look… Continue reading What I See