Australia, Marriage, Personal, Travel

Take off and landing. 

Feeling nervous about flying with Ali and without the kids for the first time. Ever. Just going from Melbourne to Sydney for an early anniversary (10 years!) overnight but it still feels a bit scary. Also having left after they went to sleep last night to stay out closer to the airport at a family… Continue reading Take off and landing. 

Accessibility, Advocacy, Australia, Books: Read This Year, Canada, Cerebral Palsy, communication, Dreams, Education, Family, friends, Friendship, Health, Holidaze, Love, Marriage, Our Daughter, Our Son, Parenthood, Personal, Photos, Sebastian's Achievements, Sibling Love, Sunshine Dream, Toronto, Travel, Writing

Happy New Year 2016!

We had an epic dance party, complete with confetti and party hats. After our 'special' dinner we put on all of our favourite, danceable songs. Starting with Shut Up and Dance with Me. The kids were asleep by 8.30. They had a blast but have still been exhausted, both getting over 'Round 2: Coughs for… Continue reading Happy New Year 2016!

Australia, Cairo, Canada, Cerebral Palsy, Epilepsy, Family, Love, Memories, Michigan, Our Son, Parenthood, Personal, photo, Seizures, Sleep, Stories, Toronto

Sebastian, Epilepsy, and the Firefly Garden

When Sebastian was just two he had an ambulatory EEG. He had to have a box with a bunch of wires which were attached to his head, sit on top of his head. Although they put gauze and tape on it, it kept falling off. This was our attempt at keeping it in place.  Sebastian is… Continue reading Sebastian, Epilepsy, and the Firefly Garden

Australia, Cairo, Cerebral Palsy, Food, Health, London, Michigan, Our Son, Parenthood, Photos, Sebastian's Achievements, Seizures, Therapy, Toronto

The Story of Food, Sebastian’s Version

Here's a bit of history for you to bring you up to date before I head into the post about our recent visits to the nutritionist and gastro-ped specialist because I didn't really write about this stuff when it was happening. When Sebastian came home from the hospital he had an NG tube (a small… Continue reading The Story of Food, Sebastian’s Version