Because even on the hard days there are always smiles. Always. At least one. Tallula has bronchitis. She's using an inhaler to open up her lungs to breath easier. There is an airflow attachment that covers her face. I was reading the instructions and they show a teddy bear and suggest using one as an… Continue reading Being a mom really is the best.
When Sebastian was just two he had an ambulatory EEG. He had to have a box with a bunch of wires which were attached to his head, sit on top of his head. Although they put gauze and tape on it, it kept falling off. This was our attempt at keeping it in place. Sebastian is… Continue reading Sebastian, Epilepsy, and the Firefly Garden
What do I want the world to know about cerebral palsy? CP is an umbrella term for motor disability caused by a brain injury. That injury could be a lack of oxygen to the brain (also caused in various ways), caused by an infection or during fetus development. There are different types of cerebral palsy,… Continue reading World Cp Day
We just returned from a very big road trip. Ali's parents are in town this month so we went exploring. We drove, ok - Ali mostly drove - from Toronto-Ottawa-Montreal-Quebec-Tadoussac-Montreal-Prince Edward County-Toronto over 11 days. Wowsa! Check out some of our photos on Instagram . We had a fabulous time but I feel like I… Continue reading The Sharps Went on Holiday
On Saturday we had our last date night for awhile I reckon. I read all the advice about how important date nights are for a relationship, especially when you have a kid, and even more so when your child has a disability. Truth is, it's just not something that is realistic for our family to… Continue reading Date Nights and Hospital Tours
Do you know what it's like to have your child monitored by doctors of all kinds? Do you prepare notes and count seizures for your next neurology appointment? Do you cringe at the thought of having him weighed or his height measured because even though he looks bigger and his clothes fit less, on paper… Continue reading Paper
I'm tapping into some P.Y.P. lingo from my days teaching under the I.B programme in Switzerland and London. It feels good to be living in a place that contributes to the opportunity to be a life long learner. Of course you can do it anywhere, but gathering with other like-minded folks for something that you… Continue reading Life Long Learner