Accessibility, Cerebral Palsy, Firefly Community, Inclusion, Our Son, Parenthood, Photos

Making a Splash…

...with the new Splashy, by Firefly. We were super excited to receive the new bath seat, the Splashy for Sebastian to try out. Sebastian chose green (one of his favourite colours) and that's all we knew about the product until it arrived in the post. Easy to assemble, just a few pieces to click into… Continue reading Making a Splash…

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Accessibility, Activism, Advocacy, Canada, Cerebral Palsy, Creativity, Family, Inclusion, Love, Notable Links, Parenthood, Theatre, Toronto

This is the Point

The point is that this is life. This is love, and sex, and parenthood. These are relationships and this is communication, stilted and awkward as those two both can be. This is taking time to listen, and going slowly. These are four people circumnavigating disability. Two lovers, both with cerebral palsy, and the pregnant mother… Continue reading This is the Point

Accessibility, Advocacy, Canada, Cerebral Palsy, Inclusion, Love, Our Daughter, Our Son, Parenthood, The things people say, Toronto

What I See

'I love you, Sebastian. Do you love me?' Tallula leans over me to see her big brother, anchored down into the accessible spot on the GO bus back to the train station. Sebastian smiles. Tallula sees him and repeats his 'yes' out loud in case I missed it. I scroll through photos tonight to look… Continue reading What I See

Accessibility, Advocacy, Cerebral Palsy, Inclusion, Our Daughter, Our Son, Parenthood, Photos, Road Trippin', Sibling Love, The things people say

Maple Syrup and Inclusion

On Friday I took the kids to Kortright Maple Syrup Farm to meet Sebastian's class for a school field trip. We were running late due to a morning appointment and I wavered between going and staying home. The clouds hung heavy and rain was in the forecast. The kids really wanted to go, regardless of… Continue reading Maple Syrup and Inclusion

Accessibility, Advocacy, Canada, Cerebral Palsy, Education, Inclusion, Love, Notable Links, Our Daughter, Our Son, Parenthood, Photos, Rights:Human, Sebastian at School, Sibling Love, Toronto, Transportation

‘I could meet him there.’

I've started going through my drafts and finishing them. You know those moments when there is something on your mind and you want to get it out into the world and then you run out of steam and you don't. Those thoughts tend to get buried beneath the newer ones. But here we are nearing… Continue reading ‘I could meet him there.’

Accessibility, Cerebral Palsy, Equipment, Firefly Community, Inclusion, Notable Links, Parenthood, Photos, Travel, Upsee

Upsee Therapy Programme and Webinar!

  I was thrilled to learn about the launch of the Upsee therapy Programme. With Sebastian at school full time and weekends spent having fun as a family, we find little time to ensure he also receives therapy. During the summer months he spends time outside in his walker and on his bike but those options aren't… Continue reading Upsee Therapy Programme and Webinar!

Accessibility, Advocacy, Canada, Cerebral Palsy, communication, Equipment, Inclusion, Literacy, Love, Nursery School, Our Son, Parenthood, Photos, Sebastian at School, Sebastian's Achievements, Sibling Love, Technology, Toronto

Eye Gaze: The Trial(s) and Tribulations 

For two weeks this summer Sebastian had another eye gaze trial with the Tobii/Dynavox I-12. This was his third extended trial with the device and he used it once a week at school the previous year. At school they focussed on games which worked on building eye gaze skills like targeting, timing and accuracy. I asked… Continue reading Eye Gaze: The Trial(s) and Tribulations