On my first Mother's Day I was carrying a photo with me of Sebastian in an incubator, connected to machines, as I was waiting for the second bus that would take us to the hospital to see him. We ran into one of Ali's previous work colleagues and despite a photo in which my baby… Continue reading Mother’s Day Memories
The point is that this is life. This is love, and sex, and parenthood. These are relationships and this is communication, stilted and awkward as those two both can be. This is taking time to listen, and going slowly. These are four people circumnavigating disability. Two lovers, both with cerebral palsy, and the pregnant mother… Continue reading This is the Point
'The Journey in the Destination' — Dan Eldon I have had that quote as my email signature for years. My first email password was journies, spelled incorrectly (don't worry, I don't use that anymore!). I first read Dan Eldon’s journal while still in college, just 3 or 4 years after he had died. It inspired… Continue reading Journeys
'I love you, Sebastian. Do you love me?' Tallula leans over me to see her big brother, anchored down into the accessible spot on the GO bus back to the train station. Sebastian smiles. Tallula sees him and repeats his 'yes' out loud in case I missed it. I scroll through photos tonight to look… Continue reading What I See
I've had a lot of time to think about what happened. After two plus days in bed one thing is certain, our bed isn't that comfortable. I wasn't being over confident. If anything just relaxed. Happy to be out in the sunshine. The freedom of a night with other adults ahead of me. I took… Continue reading Bicycles and Memories.
I've started going through my drafts and finishing them. You know those moments when there is something on your mind and you want to get it out into the world and then you run out of steam and you don't. Those thoughts tend to get buried beneath the newer ones. But here we are nearing… Continue reading ‘I could meet him there.’