Birth, Family, Love, Memories, Our Daughter, Our Son, Parenthood, Personal, photo

Mother’s Day Memories

On my first Mother's Day I was carrying a photo with me of Sebastian in an incubator, connected to machines, as I was waiting for the second bus that would take us to the hospital to see him. We ran into one of Ali's previous work colleagues and despite a photo in which my baby… Continue reading Mother’s Day Memories

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Bikes!, Childhood Memories, Family, Love, Memories, Michigan, Personal, Sibling Love, Toronto, Writing

Bicycles and Memories.

I've had a lot of time to think about what happened. After two plus days in bed one thing is certain, our bed isn't that comfortable. I wasn't being over confident. If anything just relaxed. Happy to be out in the sunshine. The freedom of a night with other adults ahead of me. I took… Continue reading Bicycles and Memories.

Activism, Advocacy, Canada, Dreams, Family, Our Daughter, Our Son, Parenthood, Personal, Politics

On Politics

  I woke this morning from a bad dream. I've been having them the past few nights. Sometimes apocalyptic in nature. Sometimes subconscious anxieties. This morning the election in the US was on my mind. While today is International Women's Day it is also the primary in Michigan. I felt like I needed to put something… Continue reading On Politics

Accessibility, Advocacy, Australia, Books: Read This Year, Canada, Cerebral Palsy, communication, Dreams, Education, Family, friends, Friendship, Health, Holidaze, Love, Marriage, Our Daughter, Our Son, Parenthood, Personal, Photos, Sebastian's Achievements, Sibling Love, Sunshine Dream, Toronto, Travel, Writing

Happy New Year 2016!

We had an epic dance party, complete with confetti and party hats. After our 'special' dinner we put on all of our favourite, danceable songs. Starting with Shut Up and Dance with Me. The kids were asleep by 8.30. They had a blast but have still been exhausted, both getting over 'Round 2: Coughs for… Continue reading Happy New Year 2016!

Cerebral Palsy, G-Tube, Health, Holidaze, Love, Our Daughter, Our Son, Parenthood, Personal, Sibling Love, Toronto

Reporting from the Front Lines. 

It's just after 7am. There's a vomit stain on my left shoulder. It's brown. 'Coffee ground vomit' they'd said. Dried blood. A shadow of yesterday every time I look up. Extreme Gastroparesis. Did they use that word, extreme? Shifts of sleep intervals between Sebastian and I. 15, 20, 30, 45 minutes tops. Total? Maybe 3… Continue reading Reporting from the Front Lines.