Accessibility, Advocacy, Canada, Cerebral Palsy, Education, Inclusion, Our Son, Parenthood, photo, Rights:Human, Sebastian at School, Sebastian's Achievements, Teaching, Technology, Toronto

School Psychologists and Standardized Tests: YUCK

Imagine a standardized test created for kids that can't talk or use their hands to point. Now imagine my non-verbal son - who cannot use his hands to point/choose - being assessed by such a test. A page of 4 picture choices. 'Which one is the boy?' He looks at the boy on the page… Continue reading School Psychologists and Standardized Tests: YUCK

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Australia, Cairo, Canada, Cerebral Palsy, Epilepsy, Family, Love, Memories, Michigan, Our Son, Parenthood, Personal, photo, Seizures, Sleep, Stories, Toronto

Sebastian, Epilepsy, and the Firefly Garden

When Sebastian was just two he had an ambulatory EEG. He had to have a box with a bunch of wires which were attached to his head, sit on top of his head. Although they put gauze and tape on it, it kept falling off. This was our attempt at keeping it in place.  Sebastian is… Continue reading Sebastian, Epilepsy, and the Firefly Garden

Cerebral Palsy, communication, Family, Love, Our Daughter, Our Son, Parenthood, photo, Sebastian's Achievements, Sibling Love, Technology, Toronto

Little Big Sister

. This girl loves her big brother very much. And he loves her. Today the first half of his school messages recorded on his switch were for her. (Hi Tallula! I missed you today.) He was so excited to share them. He got tired towards the end so looked over at her as if to… Continue reading Little Big Sister

Advocacy, Canada, Cerebral Palsy, Friendship, Inclusion, Notable Links, Our Daughter, Our Son, Parenthood, photo, Stories, The things people say, Toronto

Oh Say What You Say

Strangers We were at a friend's birthday party recently. It was held at a party place with a bouncy castle, a ball pit, and a mini-basketball hoop game. There were things to climb on and throw. Music to make. Games to play. It was a kids dream playroom. It wasn't huge but it was well… Continue reading Oh Say What You Say

Accessibility, Advocacy, Canada, Cerebral Palsy, communication, Education, Inclusion, Love, Our Son, Parenthood, photo, Sebastian at School, Sebastian's Achievements, Toronto, Transportation

Getting ready.

Sebastian sporting his new glasses. For the past 3 nights Sebastian has woken up around 1.30/2am. He has a drink of water, burps, and falls back to sleep. I wonder if he has anxiety dreams like I do about the first day of school. I used to have them every year a week before my… Continue reading Getting ready.