For two weeks this summer Sebastian had another eye gaze trial with the Tobii/Dynavox I-12. This was his third extended trial with the device and he used it once a week at school the previous year. At school they focussed on games which worked on building eye gaze skills like targeting, timing and accuracy. I asked… Continue reading Eye Gaze: The Trial(s) and Tribulations
We had an epic dance party, complete with confetti and party hats. After our 'special' dinner we put on all of our favourite, danceable songs. Starting with Shut Up and Dance with Me. The kids were asleep by 8.30. They had a blast but have still been exhausted, both getting over 'Round 2: Coughs for… Continue reading Happy New Year 2016!
Today is World Cerebral Palsy Awareness Day. Every day is CP awareness day for our family. Every day is an adventure, whether we decide it is or not! Everyday we experience the same kind of love and laughter you feel with your families. Sometimes there are challenges that seem insurmountable but they never really… Continue reading World Cerebral Palsy Awareness Day
For the first time this summer Sebastian and Tallula had swim class without me. I watched from behind the glass upstairs, with other parents and caregivers. They took turns looking up for me to make sure that, yes, I was there. I chatted with another mom whose son was in Sebastian's preschool and then later… Continue reading Just Keep Swimming
A friend asked me how I was doing today. Everything's good? Everything's okay? She said. I smiled. Yeah. We are good. But things are not okay. It's not okay that the school system is so broken. That it's overcrowded and the programs created to support our kids are spilling over in numbers without the proper… Continue reading Not Okay
Back in January (yes, January!) I received a switch dice (adapted for Sebastian's tray switches) from Excitim Special Needs Toys, the same folks that adapted Sebastian's Rally Racer toy. They asked us to test it out. We love board games (and card games!) and were immediately on 'board' with the trial. We chose Dr. Suess'… Continue reading Switch Dice