Last night Seb came home. Here he is getting ready to leave the hospital, first time out of his hospital room in two days! Here Tallula and I are receiving the news. She spent most of the day sleeping and hopefully is on her own road to recovery. We may have to… Continue reading Home.
Well, I guess the ER nurse was right. It's going to be the 23rd or the 24th before Seb comes home. But talking to him this morning on FaceTime I was greeted by a lot of smiles and vocalizations (talking). He's doing much better and looking forward to reading his Dragon Masters chapter book… Continue reading Day 3 in Hospital
It's just after 7am. There's a vomit stain on my left shoulder. It's brown. 'Coffee ground vomit' they'd said. Dried blood. A shadow of yesterday every time I look up. Extreme Gastroparesis. Did they use that word, extreme? Shifts of sleep intervals between Sebastian and I. 15, 20, 30, 45 minutes tops. Total? Maybe 3… Continue reading Reporting from the Front Lines.
We are still here! A lot of things have been keeping us busy and our minds occupied. A new school year. Two new schools, ironically neither the one we live across the street from. I'll probably be bitter about that until we move. Which we will. Eventually. I've also been taking a weekly writing class… Continue reading Bunny Hugs and Pumpkins
For my Woody and Doc McStuffins. You made today perfect. From spending the morning carving pumpkins to getting all the candy ready to pass out; to photos on the porch to Trick-or-Treating. Let's not forget your request and love of the costumes I created just for you! I am skeptical of people sometimes. I… Continue reading Happy Halloween
The verdict is in...we love it! First, we tried it with the new floor sitter attachment in the basement play area. Tallula often wants to play with Sebastian downstairs (no ramp down for his wheelchair, even though Tallula tried to invent one)! Instead, Ali or I have to hold Sebastian so his playtime is less independent.… Continue reading The New GoTo Seat has Arrived!
Today is World Cerebral Palsy Awareness Day. Every day is CP awareness day for our family. Every day is an adventure, whether we decide it is or not! Everyday we experience the same kind of love and laughter you feel with your families. Sometimes there are challenges that seem insurmountable but they never really… Continue reading World Cerebral Palsy Awareness Day