the life and times of a transplant Torontonian, raising a son with cerebral palsy and a young daughter.
When Sebastian was just two he had an ambulatory EEG. He had to have a box with a bunch of wires which were attached to his head, sit on top of his head. Although they put gauze and tape on it, it kept falling off. This was our attempt at keeping it in place. Sebastian is… Continue reading Sebastian, Epilepsy, and the Firefly Garden
When Sebastian was a baby he cried a lot and rarely slept during the day for longer than 20 minutes at a time. The only way I could take him out in the pram was if he was already asleep. He didn't like the first carrier/wrap either, unless he was asleep. We finally found the… Continue reading G-Tube Chronicles: Recovery Part 2, Feeding and Side Effects
Dear Sebastian, Tonight is the first time you've fallen asleep in my arms in months. I've missed the curve of your body around mine. The way your body fully relaxes in sleep. Your breathing slows into a sweet rhythm. In sleep you do not have cerebral palsy. You have dreams and every morning when I… Continue reading Sleeping Son
Sebastian has been doing some pretty amazing things since the New Year started. You'd think he made resolutions and is working hard to accomplish them. Just wanted to toot his horn and share some of the fun things that have happened despite the big sickness last week. With Mama's help, Sebastian walked from room to… Continue reading Stepping into the New Year
That's how old Sebastian was when he stopped nursing. Just last week. After two and a half years of nursing, following three months of exclusive pumping from birth, Sebastian decided himself to call it quits. Well, mostly himself. Sebastian has been nursing exclusively since he was five months old. From birth to three months he… Continue reading Two years and eight months
Sometimes I wish the thoughts in my head in the middle of the night while I am up with Sebastian could just go directly into my journal or onto my blog. The time to actually get those thoughts down seldom comes these days. While Sebastian has been getting back into a routine after being off… Continue reading always something to say about sleep
