East Lynn Park, Toronto. 'Mommy, someone is is the red swing.' 'It's ok sweetheart. We can wait our turn.' I roll Sebastian over in the double chariot and stop next to the swing and Tallula scrambles off to the bouncy horse nearby. A woman who had put her toddler in next to her baby… Continue reading Boys and Swings
A friend asked me how I was doing today. Everything's good? Everything's okay? She said. I smiled. Yeah. We are good. But things are not okay. It's not okay that the school system is so broken. That it's overcrowded and the programs created to support our kids are spilling over in numbers without the proper… Continue reading Not Okay
Imagine a standardized test created for kids that can't talk or use their hands to point. Now imagine my non-verbal son - who cannot use his hands to point/choose - being assessed by such a test. A page of 4 picture choices. 'Which one is the boy?' He looks at the boy on the page… Continue reading School Psychologists and Standardized Tests: YUCK
And then I heard her talking to the two young girls that stopped by out front. 'She has a brother. His name is Sebastian. He can't talk but if you speak English to him he understands. He says yes and hi with his smile.' All of this in one breath. I didn't see the girls'… Continue reading Won’t you be my neighbor?
This post is for all of us with kids/adults with disabilities in our lives. You could be a mother. A father. A sibling. A friend. A grandparent. An aunt or uncle. A cousin. A respite worker. A teacher. A therapist. Anyone. Everyone. This post is for you! If you could change 10 things that would… Continue reading Change is possible.
Some people call them parent-teacher conferences. What do you call them when you also have an OT, PT, and SLP present? Parent-teacher-therapists conferences? Sebastian left school early yesterday for hippotherapy so we didn't get a copy of his updated IEP before our meeting this morning. I still had a list of my own to discuss… Continue reading Sebastian’s Team Meeting
I introduced myself to a new mom at Sebastian's school this week. It was amazing how grateful she was. I remember being her. Alone. With a young son who cannot walk, cannot talk. Carrying him, his body stiff, or in our case too relaxed. She's in another class, just once a week and her son… Continue reading Full Time Job