Accessibility, Advocacy, Canada, Cerebral Palsy, Inclusion, Love, Our Daughter, Our Son, Parenthood, The things people say, Toronto

What I See

'I love you, Sebastian. Do you love me?' Tallula leans over me to see her big brother, anchored down into the accessible spot on the GO bus back to the train station. Sebastian smiles. Tallula sees him and repeats his 'yes' out loud in case I missed it. I scroll through photos tonight to look… Continue reading What I See

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Accessibility, Advocacy, Cerebral Palsy, Inclusion, Our Daughter, Our Son, Parenthood, Photos, Road Trippin', Sibling Love, The things people say

Maple Syrup and Inclusion

On Friday I took the kids to Kortright Maple Syrup Farm to meet Sebastian's class for a school field trip. We were running late due to a morning appointment and I wavered between going and staying home. The clouds hung heavy and rain was in the forecast. The kids really wanted to go, regardless of… Continue reading Maple Syrup and Inclusion

Accessibility, Advocacy, Canada, Cerebral Palsy, Education, Inclusion, Inspiration, Love, Our Son, Parenthood, Sebastian at School, The things people say, Therapy, Toronto

Keep Fighting

   I met a 52 year old woman today. She introduced herself to me after I made sure she had enough space to see the musicians at the Day of the Dead celebrations at Evergreen Brickworks. We had biked there so had the double chariot which is kind of a monster in small spaces. I… Continue reading Keep Fighting

Accessibility, Advocacy, Canada, Cerebral Palsy, Inclusion, Love, Our Daughter, Our Son, Parenthood, Photos, Sebastian's Achievements, Sibling Love, The things people say, Toronto

Just Keep Swimming

 For the first time this summer Sebastian and Tallula had swim class without me. I watched from behind the glass upstairs, with other parents and caregivers. They took turns looking up for me to make sure that, yes, I was there. I chatted with another mom whose son was in Sebastian's preschool and then later… Continue reading Just Keep Swimming

Accessibility, Advocacy, Canada, Cerebral Palsy, Easter Seals, Friendship, Inclusion, Our Daughter, Our Son, Parenthood, photo, Sebastian at School, The things people say, Toronto

On inclusion

  I met a man this weekend at the Easter Seals Regatta that told us that having a special class for kids with intellectual disabilities in his school as a kid fundamentally changed they way he viewed people with disabilities because they were 'included' insomuch that they were there in the same halls as he… Continue reading On inclusion

Accessibility, Advocacy, Cerebral Palsy, Friendship, Inclusion, Love, Our Daughter, Our Son, Parenthood, Photos, Sebastian's Achievements, Sibling Love, The things people say, Travel, United States

Cerebral Palsy Awareness Day

Every year I try to do something different. I've answered questions. I've shared facts, stories and photos. I've worn green and asked you to do the same. I've celebrated Sebastian and other kids like him. I've tried to create an understanding of what cerebral palsy is and what it isn't. How it affects our lives… Continue reading Cerebral Palsy Awareness Day