Due to a traumatic birth, our son suffered loss of oxygen to his brain (HIE Grade 2) and was diagnosed with cerebral palsy at age 3 months. He spent his first 16 days of life in the NICU/SCBU in London. At six months, after a second MRI, he was diagnosed with dystonic CP.
I first wrote about Sebastian’s cerebral palsy on World Cerebral Palsy Awareness Day, when he was ten months old.
Since that day, I have been able to write freely about Sebastian, his CP and our lives. Here are a few of our favorite/most popular posts:
–How are you coping?
–Answers to Questions You are Sometimes Afraid to Ask
–Grief and Me. And Three.
–Our Son is FOUR
–National Cerebral Palsy Awareness Day (US) 2012
–Film Possible Fete
–World CP Day (2013)
Sebastian is 6
Won’t You Be My Neighbor?
Sebastian is now six and a half and goes to school full time in an integrated education therapy Grade 1 classroom. He loves chocolate (coconut) ice cream, playing Go Fish, dance parties, kisses from his little sister and going fast in his Red Racer.
We invite you to follow along with us. One day at a time.
Over summer 2009, I held a fun raiser to raise funds for alternative therapies for Sebastian. We held a photography raffle and raised nearly $5500. While we were in Michigan from July-September 2009, Sebastian was able to do two new therapies, HBOT and ABM.
Winter 2009, we sold Seb Can Do Calendars for the year 2010 using photographs by the photographers that donated for our photo raffle. Some of the photos were new, while some were included in the raffle. The money raised from this fundraiser is being put towards equipment for Sebastian.
To learn about Sebastian’s (past) therapies and fund raisers, visit Sebastian Can Do.
If you’d like to continue to support Sebastian financially or send him a monetary gift, you can do so by donating to one of the organizations that have helped us, in his name. Easter Seals Ontario. Ontario Federation for Cerebral Palsy. Three to Be. C.A.R.D. (Seb’s hippotherapy centre). Epilepsy Toronto. Holland Bloorview Kids Rehabilitation Hospital.
Thank you for stopping by. We appreciate your encouragement and support.
To read more about Sebastian’s birth story, diagnosis of CP and our reaction to it, please follow the links above.